Thank you for visiting!

Isaac Makana lived an adventurous, albeit brief, 13 years and nearly 9 months battling Tay-Sachs Disease and related complications. Because of his life, we’ve met many amazing people and we will continue to share Isaac’s story to help others. We advocate for research for the treatment and cures of Tay-Sachs Disease and other rare, devastating diseases.

We will continue to adventure. For Isaac. For ourselves.

Please check back soon for updates.

Until then, also check Instagram: lorelei_n_isaac_adventure for many pictures and stories of Isaac’s life.

Isaac’s Memorial site is here:

https://everloved.com/life-of/isaac-sandoval/

Isaac Makana

11/24/2010 – 8/18/2024

“I Love You for Infinity and Beyond”