May 2nd. Is Winter over yet?

A quick update and I hope to come back and fill in more details. Isaac had a rough winter with respiratory junk almost continually. It started immediately after his birthday and had just cleared up before the NTSAD family conference in Washington DC. He started with a cough and sinus stuff a week after conference and was quickly on O2 and making people nervous with how lethargic and hoarse and a bit weak his cough became, and then he quickly got over it.

We continue to work on the seizures. In between illness Isaac is happy, is a bit more mobile… Stretches differently than he has in the past. Utilizing his whole body. It is awesome to watch. I also think he makes a few more noises. Started music therapy last week. I can’t wait to see how he enjoys that!

Thank you again for all of your prayers and we hope you all are well!

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